Thursday, April 30, 2009

I'm home now.

I'm so glad that I didn't not know exactly what was going to be done to my body before I went in for the 2nd surgery. I may not have gone in! The doc kept saying things like "if you want to back out, it's not to late" but then would follow with an "but you'd be an idiot if you did" comment. That's the kind of personality the neurosurgeon had. He gave it to me straight. The first procedure went so well that I was falsely assuming round two would be just like the first one. I now have 3 new incisions on my head! That makes a total of four, plus the 2 new ones on my chest. And yes, it all hurts. Tylenol is now my best friend.

For my Parkie friends, I only had 2 leads put in. They were placed in my G.P.I.

Wednesday, April 29, 2009

Home

Hey everyone! Marie is home! She has a big headache right now--gee I wonder why???
Surgery went well, and she is already healing, feel free to bake, cook or bring over some yummy food...Anything you do will be helpful....

Monday, April 27, 2009

Second Surgery is today

Update 6:30 PM -- Just spoke to Al, Marie is out of surgery, in recovery and going to her room soon, don't know how long she will be in hospital, Dr's say she will be sore, very sore. Will update later
Today is Marie's second surgery.
The doctors are implanting two more things (its too early in the morning for me to be technical) and the pacemaker devices in her chest. She should be out of surgery later this afternoon. She will need some help again when she gets home. Thanks to everyone who is supporting the family during this healing period. Oh and don't forget, if you visit Marie in the hospital or at home, she has a big sweet tooth and loves chocolate, and other goodies.
Mary

Friday, April 24, 2009

Deep Brain Stimulation for Dystonia Effective Long Term

Very encouraging news about DBS and dystonia!

April 24, 2009 — An implanted deep-brain-stimulation device is a safe and effective treatment for primary generalized dystonia, a new long-term study suggests. The work, published in the April issue of the Archives of Neurology, followed patients for at least 2 years after surgery, and the results are promising. "

View complete story here: http://www.medscape.com/viewarticle/701877

Wednesday, April 22, 2009

Message to friend in Telugu

హే సుజని!
యౌర్ లాంగ్వేజ్ ఇస్ ఆన్ మై బ్లాగ్! ఇస్న్'త థిస్ అ గ్రేట్ ఫెఅతురే? ఎనీ అఫ్ మై ఎంత్రీస్ కాన్ బె త్రన్స్లతెద్. టెల్ యౌర్ పరెంట్'సస తాత థెయ్ కాన్ రీడ్ ఇట్ తూ! ఆల్సో, ప్లీజ్ టెల్ తెం తనక్ యు వేరి ముచ్ ఫర్ ది యోగ డ్వ్డ్. వెన్ అరె థెయ్ కింగ్ తో విసిత్? ఐ కాన్'త వెయిట్ తో మీట్ తెం!
యౌర్ ఫ్రెండ్ ఫర్ లైఫ్,
మరీ రోహ్నేర్

Tuesday, April 21, 2009

















Message in Malayalam for a friend

ഹേ പ്രബ്!
ലുക്ക് അറ്റ്‌ ദിസ് ഫീടുരെ ഐ ഫൌണ്ട്!
സൊ വ്തെന്‍ ആരെ യു ഗോഇന്ഗ് ടോ ലുക്ക് ഇന്തോ ദ്ബ്സ്? ഡിഡ് ഐ ടെല്‍ യു ദാറ്റ് മൈ സുര്‍ജോന്‍ കാന്‍ കാന്‍ സീ non നോണ്‍ കൈസര്‍ പടിഎന്റ്റ്'സ ആസ് വെല്‍?